2017 INTERNATIONAL CONGRESS
WELLINGTON - NOVEMBER 24-26
DAY 3: SATURDAY, 26 NOVEMBER 2017
Improving care and treatment for people with EB around the world
Home Care Program Improves the Life Quality of Patients with Epidermolysis Bullosa: a Taiwanese Perspective
Claudia Yun-Tzu Chang, Taipei First Girls High School; DEBRA Taiwan & Dr Hao-Hueng Chang, National Taiwan University Hospital; DEBRA Taiwan
Challenges in diagnosis and management of Epidermolysis Bullosa in developing countries
Dr Kin Fon Leong, Dermatologist, Kuala Lumpur, Malaysia
The role of EB Clinet, and potential for developing an international EB Medical Advisory team
Dr Anja Diem, EB House Austria
EB Without Borders, panel discussion
Lea Prujean, Ritu Jain, Vlasta Zmazek, Loreto Moore, Ingrid Jageneau, Anna Kemble Welch, Zlatko Kopecki, Sharon Cassidy
Developing care guidelines for low resource situations, panel discussion
Dr Anja Diem, Dr Francis Palisson, Sharon Cassidy, Yingchun Zhou, Lea Prujean, Sumita Poopalalingam, Anna Kemble Welch
The experiences of DEBRAs in different countries - what we do best and what we still need to develop
DEBRA Croatia
Mrs Vlasta Zmazek, President of DEBRA Croatia, President of the Croatian Alliance for Rare Diseases, and member of EURORDIS Board of Directors
DEBRA Australia: Sustainable Growth - Balancing Ideas and Funds
Jenny Marty, Chair of DEBRA Australia
DEBRA Chile - DEBRA Shop Project
Loreto Moore, Director, DEBRA Chile
DEBRA Russia - international collaborative fundraising projects: "The Untouchables"
Tatyana Volgunova, Project Manager, DEBRA Russia
The Global Butterfly Run 2017: Russia, Chile and Singapore
Oxana Romanchuk, (DEBRA Russia), Carmen Justiniano (DEBRA Chile), Ritu Jain (DEBRA Singapore)
DEBRA New Zealand - Tribulations and innovations
Martin Hanley