2017 INTERNATIONAL CONGRESS
WELLINGTON - NOVEMBER 24-26
DAY 2 - SATURDAY 25 NOVEMBER, 2017
The experiences of EB clinical care in different countries - what we do best and what we still need to develop
Epidermolysis Bullosa in New Zealand
Dr Diana Purvis, Dermatologist and Paediatrician, Consultant Paediatric Dermatologist, Department of Paediatrics, Starship Children's Health, Auckland City Hospital, NZ
EB House Austria
Dr Anja Diem, EB Specialist MD, EB House Austria, University Hospital of Dermatology, Salzburg, Austria
A case report of bone marrow transplantation treatment for a RDEB patient in China - NOTE: NO VIDEO
Dr Zhe Zu, Department of Dermatology, Beijing Children's Hospital, Capital Medical University, Beijing, China
Q&A
Prof Dedee Murrell, Moderator
The experiences of DEBRAs in different countries - what we do best and what we still need to develop
DEBRA Croatia
Mrs Vlasta Zmazek, President of DEBRA Croatia, President of the Croatian Alliance for Rare Diseases, and member of EURORDIS Board of Directors
DEBRA Australia: Sustainable Growth - Balancing Ideas and Funds
Jenny Marty, Chair of DEBRA Australia
DEBRA Chile - DEBRA Shop Project
Loreto Moore, Director, DEBRA Chile
DEBRA Russia - international collaborative fundraising projects: "The Untouchables"
Tatyana Volgunova, Project Manager, DEBRA Russia
The Global Butterfly Run 2017: Russia, Chile and Singapore
Oxana Romanchuk, (DEBRA Russia), Carmen Justiniano (DEBRA Chile), Ritu Jain (DEBRA Singapore)
DEBRA New Zealand - Tribulations and innovations
Martin Hanley
THE EXPERIENCES OF PEOPLE LIVING WITH EB
DEBRA International member groups
Lea Prujean, DEBRA NZ & International Coordinator, EB Without Borders
DEBRA Canada
Erin Hoyos, Project Coordinator & Administrative Officer, DEBRA Canada
DEBRA Ireland
Jimmy Fearon, CEO, DEBRA Ireland
DERBRA Argentina
Ariel Vaisman
DEBRA Singapore
Ritu Jain, President, DEBRA Singapore