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2017 INTERNATIONAL CONGRESS

WELLINGTON - NOVEMBER 24-26

DAY 2 - SATURDAY 25 NOVEMBER,  2017

The experiences of EB clinical care in different countries - what we do best and what we still need to develop

Epidermolysis Bullosa in New Zealand

Dr Diana Purvis, Dermatologist and Paediatrician, Consultant Paediatric Dermatologist, Department of Paediatrics, Starship Children's Health, Auckland City Hospital, NZ

EB House Austria

Dr Anja Diem, EB Specialist MD, EB House Austria, University Hospital of Dermatology, Salzburg, Austria

A case report of bone marrow transplantation treatment for a RDEB patient in China - NOTE: NO VIDEO

Dr Zhe Zu, Department of Dermatology, Beijing Children's Hospital, Capital Medical University, Beijing, China

Q&A

Prof Dedee Murrell, Moderator

No notes

The experiences of DEBRAs in different countries - what we do best and what we still need to develop

DEBRA China

Mr Yingchun Zhou, President of DEBRA China

DEBRA Croatia

Mrs Vlasta Zmazek, President of DEBRA Croatia, President of the Croatian Alliance for Rare Diseases, and member of EURORDIS Board of Directors

DEBRA UK

Ben Merrett, CEO DEBRA UK

DEBRA Australia: Sustainable Growth - Balancing Ideas and Funds

Jenny Marty, Chair of DEBRA Australia

No notes

DEBRA Chile - DEBRA Shop Project

Loreto Moore, Director, DEBRA Chile

No notes

DEBRA Russia - international collaborative fundraising projects: "The Untouchables"

Tatyana Volgunova, Project Manager, DEBRA Russia

No notes

The Global Butterfly Run 2017: Russia, Chile and Singapore

Oxana Romanchuk, (DEBRA Russia), Carmen Justiniano (DEBRA Chile), Ritu Jain (DEBRA Singapore)

No notes

DEBRA New Zealand - Tribulations and innovations

Martin Hanley

No notes

THE EXPERIENCES OF PEOPLE LIVING WITH EB

DEBRA International member groups

Lea Prujean, DEBRA NZ & International Coordinator, EB Without Borders

DEBRA Canada

Erin Hoyos, Project Coordinator & Administrative Officer, DEBRA Canada

DEBRA Ireland

Jimmy Fearon, CEO, DEBRA Ireland

DERBRA Argentina

Ariel Vaisman

DEBRA Singapore

Ritu Jain, President, DEBRA Singapore