CHRISTMAS NEWSLETTER 2025 Meri kirihimete from all the DEBRA team!

Be in to win a Thermomix TM27 and support Debra families.

EB turns something as simple as getting dressed  into a source of pain. That's why you can wear your clothes inside out - to stand with those living with this painful condition. EB AWARENESS WEEK 25 - 31 October Join in. Speak up. Donate Donations can be made here: https://givealittle.co.nz/org/debranz

Fill out our survey to let us know which date suits you best for the next family camp/conference.

Huge thanks to Titan Cranes for their winning bid for Joe Worthy's replica model crane, and to all the other companies that chipped in to raise money for DEBRA NZ,

Krystal Biotech’s VYJUVEK has been approved by Japan’s Ministry of Health, Labour and Welfare for the treatment of wounds caused by dystrophic epidermolysis bullosa (DEB).

DEBRA NZ Conference/Family Camp - so wonderful to see everyone and for the new families to meet others for the first time.

Last night we 45 years of DEBRA NZ with a lovely little function in Wellington. Honouring our wonderful founder, Jillyan Hing, and all she did to start our NZ organisation.

Such wonderful humans providing support for EB awareness and fundraising for research - thank you from our hearts Eddie and Jill Vedder!