DEBRA NZ family camp 2013

  Welcome to DEBRA New Zealand. We are the Kiwi charity working on behalf of people with the rare skin blistering condition Epidermolysis Bullosa (EB).  

This site is your first port of call for reliable information on EB whether you or your child has EB, you are a clinician or caregiver treating someone with EB, you want to help improve life for children with EB, or you simply want to find out more.

What is EB?

EB is a group of genetic disorders that causes blistering and shearing of the skin from the slightest friction, even from everyday activities. EB symptoms can vary, from a relatively mild condition to an incapacitating, and sometimes fatal, disorder… Find out more about EB

Latest News


Tango Poster We are counting down to the 13 September! An exciting evening of Tango dancers and musicians showcasing Piazzolla and traditional Argentine tango, Friday 13 September, 6.30pm at St Andrews on the Terrace, Wellington. Please come along and bring your friends and family! The Argentinians on the International Spouses Group are organising this fundraising event for DEBRA's benefit. The $20 ticket includes a glass of wine and nibbles. Really great value for a fun Friday evening!

Tickets can be bought as a donation on our givealittle page for $20.00 each. Please give Tango as a reference (make sure your name is there). Or else online through eventfinder for $22.00.

News and Newsletter Archive

DEBRA NZ gallery


Helpful hints

Softening food

Mashed potato, pasta, soups, and pulping the dinner in the blender all help make food smooth and easier to swallow when dealing with mouth blisters and throat constrictions. Add gravy, sauces, mayonnaise and/or soft grated cheese for extra flavour and calories. More helpful hints


+64 (0)4 389 7316   Contact an EB nurse

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