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What is EB? Epidermolysis Bullosa, known as EB, is the name of a group of genetic disorders causing blistering and shearing of the skin from even the gentlest friction, often from everyday activities. Three main types of EB have been identified, (Dystrophic, Simplex and Junctional) with many different sub-types. EB can vary from a relatively mild condition to an incapacitating, and sometimes fatal, disorder.
In New Zealand there are a handful of children and several adults with severe EB. A larger number of people have milder strains, but still bad enough to make life challenging. Click on the links
to read more of their stories. Very few New Zealanders
have any contact with EB and it is difficult to realise that their special
needs do not fit into any mainstream charities. This web site has
been created to support and inform. In it we hope to update information
on whats happening here in New Zealand as well as to create a resource
for families needing support. who are we | supporters | profiles | whats happening | home |
