Welcome to DEBRA New Zealand. We are the Kiwi charity working on behalf of people with the rare skin blistering condition Epidermolysis Bullosa (EB).
This site is your first port of call for reliable information on EB whether you or your child has EB, you are a clinician or caregiver treating someone with EB, you want to help improve life for children with EB, or you simply want to find out more.What is EB?
EB is a group of genetic disorders that causes blistering and shearing of the skin from the slightest friction, even from everyday activities. EB symptoms can vary, from a relatively mild condition to an incapacitating, and sometimes fatal, disorder… Find out more about EB
Latest News
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DEBRA NZ Newsletter - Dec 2010 (PDF)
Thirty years of DEBRA NZ. Government agrees to fund EB Nurses. Conference report. Summer Advice from the Nurses…
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Butterfly children to get specialist nurse service (Ministry of Health)
28 Oct 2010 Health Minister Tony Ryall says the Government will help fund part-time specialist nurses who travel around the country supporting treatment for the debilitating skin condition, Epidermolysis Bullosa (EB).
DEBRA NZ gallery
Helpful hints
Softening food
Mashed potato, pasta, soups, and pulping the dinner in the blender all help make food smooth and easier to swallow when dealing with mouth blisters and throat constrictions. Add gravy, sauces, mayonnaise and/or soft grated cheese for extra flavour and calories. More helpful hints