DebRA
DebRA New Zealand

 

Imagine if ...

• the touch of clothing tears off your skin.
• your feet blister under your own weight.
• a tiny strand of hair in your eye makes it swell and blister.
• your throat rips and scars when you eat normal food.
• it takes three hours every day of your life to treat and dress your wounds...

This is the reality of living with Epidermolysis Bullosa or EB–a rare, distressing, skin–blistering condition.

Find out more about the
EB Awareness Campaign

Read up on some
Helpful Hints for E.B

To contact DEBRA NZ email: debranewzealand@gmail.com

or ph. +64•4•3897316


What is EB?
Epidermolysis Bullosa, known as EB, is the name of a group of genetic disorders causing blistering and shearing of the skin from even the gentlest friction, often from everyday activities. Three main types of EB have been identified, (Dystrophic, Simplex and Junctional) with many different sub-types. EB can vary from a relatively mild condition to an incapacitating, and sometimes fatal, disorder.

Latest News!

 



Click here
to download the latest DEBRA NZ
Newsletter April 2008

Click here to read the DEBRA NZ , June 2007 Newsletter.

Click here to go through to TV3's 60minutes segment on living with EB in New Zealand


Click here to view the latest EB advertising campaign created by DEBRA Austria

What is DEBRA NZ?
In New Zealand there are a handful of children and several adults with severe EB. A larger number of people have milder strains, but still bad enough to make life challenging.

Click on the links to read more of their stories.
Humphrey Ashley Holly Damien and Samantha

Very few New Zealanders have any contact with EB and it is difficult to realise that their special needs do not fit into any mainstream charities.
Everyday, our EB kids are wrapped head to toe with special protective bandages, their wounds are bathed and dressed in sterile dressings.

This web site has been created to support and inform. In it we hope to update information on whats happening here in New Zealand as well as to create a resource for families needing support.
We appreciate the support of FINZSOFT.COM for providing hosting services for our website.

Click here for Extensive information about EB


who are we | supporters | profiles | whats happening | home