DEBRA NZ family camp 2013

  Welcome to DEBRA New Zealand. We are the Kiwi charity working on behalf of people with the rare skin blistering condition Epidermolysis Bullosa (EB).  

This site is your first port of call for reliable information on EB whether you or your child has EB, you are a clinician or caregiver treating someone with EB, you want to help improve life for children with EB, or you simply want to find out more.

What is EB?

EB is a group of genetic disorders that causes blistering and shearing of the skin from the slightest friction, even from everyday activities. EB symptoms can vary, from a relatively mild condition to an incapacitating, and sometimes fatal, disorder… Find out more about EB

Latest News

Tango!

Tango Poster We are counting down to the 13 September! An exciting evening of Tango dancers and musicians showcasing Piazzolla and traditional Argentine tango, Friday 13 September, 6.30pm at St Andrews on the Terrace, Wellington. Please come along and bring your friends and family! The Argentinians on the International Spouses Group are organising this fundraising event for DEBRA's benefit. The $20 ticket includes a glass of wine and nibbles. Really great value for a fun Friday evening!

Tickets can be bought as a donation on our givealittle page for $20.00 each. Please give Tango as a reference (make sure your name is there). Or else online through eventfinder for $22.00.

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DEBRA NZ gallery


 

Helpful hints

Pain-free washing - Saline bathing

Washing a wound or graze ‘stings’, whether you have EB or not. Wetting raw wounded areas with ‘normal’ saline solution doesn’t sting at all, like magic it’s painless.

Normal saline solution is 0.9% salt (sodium chloride), that’s:

  • 0.9 grams of salt / 100ml of water;
  • 90 grams of salt (about half a cup) / 10 litres of water.
More about saline bathing

  

+64 (0)4 389 7316   debra@debra.org.nz   Contact an EB nurse

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