Speakers

 

Clinicians & Researchers

Sharon Cassidy, EB CNS, DEBRA NZ Christchurch, New Zealand
Prof Allison Cowin, Professor of Regenerative Medicine and NHMRC Senior Research Fellow, Future Industries Institute, University of South Australia
Jane Clapham, UK EB Nurse Specialist, Guys and St Thomas Hospital, London, UK
Dr Anja Diem, EB Specialist MD EB House Austria, Outpatient Unit, University Hospital of Dermatology, Salzburg, Austria
Prof Rod Dunbar, Maurice Wilkins Centre & School of Biological Sciences, University of Auckland
Dr Margarita Gekht, DEBRA Russia. City Dermatovenerologic Hospital in Saint - Petersburg, Russia; Children's Dermatology
Dr Johannes Kern, Dermatologist, Dermatopathologist Consultant, Royal Melbourne Hospital and Box Hill Hospital, and Adjunct Senior Lecturer Monash University, VIC, Australia
Dr Tariq Khan, Consultant Podiatrist, Great Ormond Street Hospital for Sick Children, UK, and Dermatology Departments St George Hospital Sydney and Royal Melbourne Children's Hospital
Dr Zlatko Kopecki, PhD, Foundation Fellow, Regenerative Medicine, Future Industries Institute, University of South Australia
Prof Birgit Lane, Executive Director, Institute of Medical Biology A*STAR - Agency for Science, Technology and Research, Singapore
Dr Kin Fon Leong, Consultant Paediatric Dermatologist, Hospital Kuala Lumpur, Malaysia
Dr James Lucas, Specialist Paediatric Dentist, Deputy Director of the Dental Department, The Royal Children's Hospital, Melbourne and Clinical Associate Professor at the University of Melbourne, Australia
Caroline Mackenzie, UK EB Nurse Specialist, Guys and St Thomas Hospital, London, UK
Kattya Mayre-Chilton, PhD Clinical Practice Guideline Co-ordinator, DEBRA International
Prof Nikolay Murashkin, MD, Head of the Dermatology Department, National Medical Research Center of Children's Health, Moscow, Russia
Prof Dedee Murrell, Head of Department of Dermatology, St George Hospital, University of New South Wales, Sydney, Australia
Dr Francis Palisson, Dermatologist, Clinica Alemana, Santiago, Chile and President of DEBRA Chile
Dr Diana Purvis, Dermatologist and Paediatrician, Consultant Paediatric Dermatologist, Department of Paediatrics, Starship Children's Health, Auckland City Hospital   
Dr Susan Robertson, Dermatologist, The Royal Children's Hospital, Melbourne, Australia
Dr Clare Robinson, Head of Research, DEBRA International (by video link)
Dr Satoru Shinkuma, MD, PhD. Department of Dermatology, Niigata University, Japan
Dr Zhe Xu, MD, PhD. Department of Dermatology, Beijing Children’s Hospital, Capital Medical University Beijing, China   

DEBRA projects & parents/adults living with EB as speakers/panel members

Claudia Yun-Tzu Chang, Taipei First Girls High School; DEBRA Taiwan
Dr Hao-Hueng Chang, National Taiwan University Hospital; DEBRA Taiwan
Humphrey Hanley, DEBRA NZ Ambassador, Wellington, New Zealand
Martin Hanley, Projects volunteer, DEBRA NZ
Ritu Jain, DEBRA Singapore
Carmen Justiniano, DEBRA Chile
Anna Kemble Welch, Director, DEBRA NZ, DEBRA International Exec Committee, Wellington, New Zealand
Dr Jennifer Marty, PhD. Chair of DEBRA Australia, Sydney, Australia
Ben Merrett, CEO, DEBRA UK
Ms Loreto Moore, Director, DEBRA Chile, Vice President of DEBRA International, Santiago, Chile
Lea Prujean, DEBRA NZ & EBWB
Oxana Romanchuk, DEBRA Russia
Tatyana Volgunova, DEBRA Russia project manager
Mr Yingchun Zhou, President of DEBRA China, Shanghai, China  
Mrs Vlasta Zmazek, President of DEBRA Croatia, President of the Croatian Alliance for Rare Diseases, and member of EURORDIS Board of Directors, Zagreb, Croatia

Presentation of Abstracts

Rachel Box, Kings College London, UK
Jessica Szu-Chia Chen, Department of Dermatology, St George Hospital, Sydney, NSW, Australia
University of New South Wales, Sydney, NSW, Australia
Dr Adam Harris, Dept of Dermatology, St George Hospital & University of NSW, Sydney, Australia
Lynne Hubbard, Department of Nutrition and Dietetics, St Thomas’ Hospital, London, UK
Rosie Jones, Specialist Paediatric Dietitian, Birmingham Children's Hospital NHS Foundation Trust
Wakana Matsumura MD, Department of Dermatology, Hokkaido University Graduate School of Medicine, Sapporo
Sumita Poopalalingam RN, Masters Candidate, Institute of Health and Biomedical Innovation, Queensland University of Technology, QLD Australia