We are counting down to the 2018 DEBRA International Congress with less than 2 months to go. Watch the recording of DEBRA of America’s meeting with the FDA. 2 brand new CPGs are now in development. We need 2 volunteers to help review the Oral Health Care CPG – could this be you? The deadline to apply for the €50,000 Care-for-Rare Science Award closes 31 July. Find out about a new clinical trial called WINGS from ProQR. The 24th IADH Congress will take place in Dubai in August and September with a focus on EB. Apply now for the EURORDIS Winter School!