We are counting down to the 2018 DEBRA International Congress with less than 2 months to go. Watch the recording of DEBRA of America’s meeting with the FDA. 2 brand new CPGs are now in development. We need 2 volunteers to help review the Oral Health Care CPG – could this be you? The deadline to apply for the €50,000 Care-for-Rare Science Award closes 31 July. Find out about a new clinical trial called WINGS from ProQR. The 24th IADH Congress will take place in Dubai in August and September with a focus on EB. Apply now for the EURORDIS Winter School!
DEBRA NZ Newsletter - June/July 2018
Contents:
- DEBRA International Congress
- Bernadette Mark's Story
- EB & Genetics
- The Nursing Team
- DEBRA Members & Family
- DEBRA NZ News
Download:
Nehal Tailor's Research Report on improving patient healthcare through online communities
DEBRA NZ Newsletter - June 2017
Read our Autumn/Winter newsletter, with the latest updates.
Including:
- An update on the 2017 DEBRA International Congress
- Notes from the EB Clinical Nurse Specialists
- News from across the ditch
- A profile of DEBRA NZ member Nichola Anderson
- And an article on Anna & Martin from the Sunday Star Times.