"It's a game-changer" - on Seven Sharp

Ahead of his trip to TwitchCon in the United States as a panelist talking about supportive gaming communities, No Hands No Excuses blogger Humphrey Hanley discusses gaming with EB on Seven Sharp.

Read here.

To follow Humphrey on video streaming site Twitch, follow his NoHandsNZ channel.

  “And then the Internet came along, where suddenly I could be myself without people being able to judge me based on the fact I had a medical problem.”

“And then the Internet came along, where suddenly I could be myself without people being able to judge me based on the fact I had a medical problem.”

DEBRA International Newsletter

We are counting down to the 2018 DEBRA International Congress with less than 2 months to go. Watch the recording of DEBRA of America’s meeting with the FDA. 2 brand new CPGs are now in development. We need 2 volunteers to help review the Oral Health Care CPG – could this be you? The deadline to apply for the €50,000 Care-for-Rare Science Award closes 31 July. Find out about a new clinical trial called WINGS from ProQR. The 24th IADH Congress will take place in Dubai in August and September with a focus on EB. Apply now for the EURORDIS Winter School!