Improving the quality of life for people with Epidermolysis Bullosa (EB) and their familes.
Click here to register
Friday 12 - Sunday 14 April 2019
Silverstream Retreat, Hutt Valley, Wellington
VIDEO games & EB
Humphrey Hanley on a panel at TwitchCon
What is EB?
If you have EB then your skin is more delicate, it blisters or tears more easily. Find out more.
Find out about our specialist nursing service, and the nurses you'll be dealing with.
Read our resource for new parents and families.
CONGRESS 2017 Highlights
From the DEBRA International Congress 2017 held in New Zealand
No hands, no excuses. Tackling the challenges of a disability, gym life, eating well, and getting through those everyday tasks.