Who are we?

The DEBRA New Zealand Trust, formerly DEBRA NZ (The Dystrophic Epidermolysis Bullosa Research Association of New Zealand) is an organization dedicated to the improvement in the quality of life for all people with EB and their families.

With EB being such a rare condition fundraising is not easy. We are a small voluntary charitable trust with very limited personnel and resources.

DEBRA New Zealand consists of families whose lives are affected by EB with the support of a group of Trustees and Medical advisors. For further information on how you can support DEBRA New Zealand or to contact us visit our supporters page.

Conference Attendees November 2006

What are the aims of DEBRA New Zealand?

• To raise funds to help with the care of people in New Zealand with EB including employing 3 specialist EB nurses part time.
• To support the families that are part of DEBRA New Zealand, through practical advice, guidance and the opportunity to meet annually.
• To provide EB patients and their families with information about the disorder and assist them in finding medical, social and genetic counselling.
• To support doctors and other health professionals in New Zealand to help our EB sufferers.
• To raise awareness about EB and distribute educational material about EB to members of the public.

Contact Details: Director, DEBRA New Zealand Anna Kemble Welch 123 Daniell Street, Newtown, Wellington Tel. 04 389 7316 email: debranewzealand@gmail.com   DEBRA New Zealand Nursing Team Jacqui Finnigan PO Box 55196, Mission Bay, Auckland. Tel: 021 486 799 email: jacqui.finnigan@xtra.co.nz Deanna Forsyth PO Box 6, National Park Tel: 0800 EB Nurse (0800 326 877) email: debranurse@kol.co.nz Sharon Cassidy 18 Jenkins Ave, Redwood, Christchurch 8051 Tel: (03) 3523 651 or 027 2955 857 email: sosnursing@xtra.co.nz

who are we | supporters | profiles | what's happening | home