DebRA
DebRA New Zealand

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DEBRA NZ would like to formally thank all those who gave grants, donations and sponsorship to help us achieve our aims for the future.

 

GRANTS & CORPORATE / SERVICE CLUB DONATIONS

April 2002 / January 2004

W M Bamford & CO - January 2004
$500 for the EB Teen Camp

J R McKenzie Trust Grant - December 2003
$10,000 for part time national co-ordinator & admin expenses

Trust House Charitable Trust - November 2003
$3,000 towards a recreational and life skills camp for young people with EB and their caregivers.

Office of the Commissioner for Children - February 2003
$2,365 for a family with a child with severe EB to attend the first Australian National EB Conference & Childrens camp in Adelaide in May 2003.

J R McKenzie Trust Grant - December 2002
$7,000 for part time national co-ordinator & admin expenses

Paul Newman Foundation - May 2002
Nearly $9,000 for special needs project. The funds will be to top up the difference between the normal cost of a necessary product and the extra cost of a more expensive version needed because of EB. Also items/services such as Glasses and Dental work needed because of EB but not covered by the public health system.

April 2001 / March 2002
( in the chronological order that they were received)

NZ Community Trust, through The Office Café and Bar, Newtown : $1500
(total applied for: $15,000. Grant specified funds to be spent on airfares only)
Application for Humphrey (and his nurse) to go to 2 US dermatology camps as a counsellor.

Lions Club of Masterton : $200

BP Oil NZ Ltd : $500
Sending a child to summer camp, or emergency reserve fund.

Nu Skin NZ : $10,000
Ashley Worthy to visit Stanford Clinic and specialist camp in the US.

Lion Foundation, through the Railway Hotel, Greymouth : $8000
(total applied for: $32,100)
Application for specialist EB nurse, life experience camp, and annual family conference.

Thomas George Macarthy Trust : $3500 (total applied for: $8000 )
Trust supports people within the Districts of Ruapehu / Wanganui / Manawatu / Wellington.
Application for office equipment and education, including a lap top computer and programs for Wellington based admin, internet connection, power point presentations etc; web site design; publication of brochures about EB; newsletter production; distribution of "The Boy Who Dared" to schools in Wellington Region.

NZ Post, Community Post : $100 of postage-included envelopes

J R McKenzie Trust : $3500 (total applied for: $42,840)
Application for specialist EB Nurse, life-experience camp, web site development, office administration costs, part time national co-ordinator / administrator.

Western Hutt Rotary Club : $200
Donation following a speech to the club by Humphrey and Anna about living with EB.

National Bank : $1000
Donation at the request of Sir John Anderson to assist DEBRA and EB children.

KPMG : $2000
Donation from the staff fundraising.

Nu Skin NZ Christmas Appeal : $1200
Donation in support of the EB camp/convention being planned in Adelaide, May 2003.

Catholic Women's League of NZ : $830
Donation in support of international research into EB.

Carlin Enterprises : $20,000
"The Quest to Queenstown" charity concert in March 2002, featuring Hayley Westenra, Suzanne Prentice, Carlin and the Christchurch Symphony Orchestra, and MC Mark Hadlow.

And thanks to all the other generous friends, relations, individuals and businesses who are not named here but who gave donations and support.


SPONSORSHIP

Thanks again to these companies for their support of the event at Government House:
· Philip Woollaston of Woollaston Estates in Nelson for 2 free & 2 subsidised cases of wine.
· Resene paints for the donation of a case of Daniel le Brun champagne.
· Neudorf Estates in Nelson for the donation of 6 bottles of wine for us to give as thank you presents to supporters (including the Commissioner for Children).
· The Vipers jazz group who played beautiful music for free at Government House.
· Allfields Apartments for accommodation for Gilshnans and Worthys while in Wellington.

Public Relations
Joanne Ruscoe and Deborah Morris (then at Communications Trumps) arranged media releases and publicity, and helped organise the Government House event in November 2001, including the live butterfly release at Government House by DEBRA NZ's new patron the Governor General Dame Silvia Cartwright, with the help of Holly and Humphrey.
Joanne says caring for a box of butterflies is harder than it looks.

Joanne is now helping us from her new company, Ruscoe Public Relations Ltd.

Web Site
DEBRA web site developed by John Denton (Wellington principal of National College of Design and Technology), and Raewyn Baldwin, who arrange free hosting of site by Finzsoft.

Letterhead
Designed by John Denton, with free printing by Format Print, thanks to Angie London.

Brochures
· Draft of brochure for DEBRA NZ put together by Tony Baldwin, with final version created by Raewyn & John, including photos courtesy of DEBRA UK & NZ Woman's Weekly.
· copies printed free by Centurion Print, arranged by Nu Skin contact, Paul Johnson at CFL.
· A second edition of 5000 more brochures, including a photo of the Governor General with Holly and Humphrey, was printed free by Format Print, thanks again to Angie London.

Legal Advice
DEBRA NZ's honorary solicitor Helen Bowie, a partner at Chapman Tripp, with the help of solicitor Annelies McClure and Imeleta Perez, Helen's PA, have given us a lot of very valuable advice, help and support in the last year.

Accountants
Thanks to Margot Young for looking after the Trust Account and preparing the Statement of Financial Position, and Helen Miller, who is going to be the Auditor for the Trust Account.

Donation Boxes in Amcal Chemists
Thanks to Rachael Jennings of Amcal for arranging to have our collection boxes in all their outlets for the weeks leading up to Christmas 2001.
Thanks also to Lynne James of Charta Packaging Ltd who donated the bright pink boxes.

Office of the Commissioner for Children
We have had wonderful help and support in the last year from the Commissioner for Children, Roger McClay, and his staff, for which we can't thank him enough.

United Airlines
Thank you, particularly the Wellington Regional Manager, Peter McGhie, for help with Humphrey's and his caregiver Wendy's travels to the States last year for him to be a counsellor at Camp Discovery, and for getting him home again safely after September 11 when he was on the other side of the world. United Airlines made the long trip as comfortable as possible for them.

 

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