The DEBRA NZ Team
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Left to right, Sharon Cassidy - EB Nurse, Neville Carson – Chair of Trustees, Jillyan Hing – Founder and Trustee, The Rt Hon. Sir Annand Satyanand, Governor-General of NZ – Patron, Lady Susan Satyanand, Jacqui Finnigan – EB Nurse, Anna Kemble Welch – Director of DEBRA NZ
Patron
His Excellency The Right Honourable Sir Annand Satyanand, Governor-General of New Zealand
See also
Chair of Trustees
Neville W.M. Carson – Barrister and Theatre Administrator, Wellington
Trustees
- Jillyan Hing – Business woman, Hastings.
- Clare Prendergast – Legal Advisor, Nursing Council of New Zealand,
Wellington. - Professor Ingrid Winship – Professor of Adult Clinical Genetics, University of Melbourne, Australia.
Director
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Anna visiting an EB family in Talca, Chile, with their new container home
Anna Kemble Welch
Anna has been the part time Director of DEBRA NZ since 2001, planning annual conferences, camps and events, organizing and fundraising for the DEBRA Nursing Service and other DEBRA projects.
She is also the current President of DEBRA International, a network organisation for DEBRA groups in over 40 countries.
Anna is a registered Architect with her own practice, Red Design: Architects. Red Design specialises in houses, bachs, projects for the elderly and people with mobility issues, and urban design schemes. These all have a high design content and an environmentally-friendly twist.
Projects Officer
Martin Hanley
Martin has been the voluntary DEBRA NZ projects officer since 1985.
Martin is a part time Lecturer in Architecture at Victoria University, Wellington, and the Disability Support Officer for the Te Aro Campus. He is also a partner in Red Design.
Anna and Martin live in Wellington and their son Humphrey has Recessive Dystrophic EB. For many years they have been tirelessly raising public awareness of EB and helping DEBRA New Zealand develop into a very effective organisation.
Honorary Solicitor
Helen Bowie – Partner, Chapman Tripp, Wellington
DEBRA NZ Volunteers
A team of DEBRA NZ volunteers get involved at different times to help with projects including conferences, camps, newsletters and publicity.